Thursday, January 10, 2013

I wish millions of people read my blog...

just because that would be millions more who would know what Fragile X is.

I try so hard in my little world to spread the word about Fragile X Syndrome and all the things that are tied to it.

Do you know that people with Fragile X can also have autism?

That's why it is so important for those who have familial occurrences of Autism to be tested for Fragile X Syndrome. Check out this article FXS and Austism: Similar but Different

Do you know what FXTAS is?

It stands for Fragile X Tremore Ataxia Syndrome. You can read about that here.

Do you know what FXPOI is?

It stands for Fragile X Premature Ovarian Insufficiency. You can read more about that here.

All this time that you have been reading my blog did you even realize that I, as a carrier have to be aware of what my own future can hold along with my own children's.

That's why I try to spread awareness.

It doesn't just affect those who have the full mutation of Fragile X Syndrome but the carriers fo Fragile X also.

So, if you have a moment, share this video created by the National Fragile X Foundation at the 2012 Conference with some one else and maybe, just maybe it will reach millions...

...OK, I'll settle for 1000 (smile) (and a wink)

2 remarks:

Nurse Heidi said...

I think you're awesome. The end.

Rachael said...

Awe. Heidi, you make me blush ;)