Monday, February 23, 2009

It's Official!


OK, I am going to Washington D.C. for Fragile X Advocacy Day next week! I will be gone for five days! I will spend two days on FXS stuff and 2 days touring around D.C. I am so excited and so nervous all at the same time. It will be a great experience for me, lobbying for Fragile X Syndrome! Woo hoo!

Also, I am officially in charge (as a parent resource of Utah Fragile X Association) of the statewide seminar for Fragile X Syndrome here on Saturday, May 16, 2009. I am going to need all the help I can get. Volunteers to help with e-mails, flyers, manning stations and tables, babysitting my kids while I prepare and check out venues and get things set up—the whole nine yards. I am not sure what venue we will be using for this event as I am still getting that in the works, but, I am going to need help. So this is my official request to all you out there who want to help. Just leave a comment here and let me know what you would like to do. It can be physical, emotional or monetary support (checks would go to Angel Hands Foundation and in the memo line you would put "FX donation"). You just let me know, we will take what we can get. If any of you have connections for venues, or sponsors—let me know, if any of you have hidden talents that I do not know of that you feel would help in this cause and you live near me—let me know. This is my sign up list for helpers. I know I can't do this on my own, even with the two other leaders who are over this with me—they have other things going on, like the Walk for Fragile X Syndrome that same month! So, here it is, my plea for help... HELP!! Even if you have contacts with newspapers, or news reporters or whatever—let me know.



Don't leave your e-mails or phone numbers on your comments, my blog is searchable through Google, so for your privacy, just assume I will be able to get a hold of you.

Thanks to all of you for your support that you give to my family all the time!!


9 remarks:

Kirsten Amelia said...

Go Rachael! This is so exciting. So you're in charge of it after all? Sorry we couldn't do it here. You know I will help as much as I can! Love you!

The Chizel Family said...

I will do whatever you want me to, I am a good babysitter:)

Jared & Cheryl said...

I LOVE Washington DC! You are going to have so much fun:) I would love to help you with your seminar...let me know what I can do.

brookiebaby said...

I don't have any state-wide media connections, but I'd be more than happy to write a PSA and press release to send out to the media to promote the event. Also, if I can get a sitter, I'd love to help you that day. I just got done coordinating a large event for our area, and I LOVED having a "runner" so, I could help do that or whatever you wanted/needed. Also, I'm on FACEBOOK, and could promote it that way, so when you get a place settled, let me know. Let me know if any of this helps...and you can send me the info.

Rosanne Orgill said...

that sounds like quite the trip, good luck with that. It sounds like you are helping a lot with getting the info out there about fx, have fun

CariJo said...

I'm here to help - let me know what you need.

the other lion said...

Hi! Just found you through the FX Community! I look forward to reading your blog -- congrats on DC. Someday I will go!

Staci said...

Washington DC is the best!! There are so many things to do and see and never enough time. Wherever you are lacking help for your seminar just let me know and I will be more than happy to help.

FXSmom said...

Thanks for sharing your blog on the FX community!! I can't wait to learn more about you and your kiddos :)