OK, it is official. Check us out on KUTV channel 2 news Wednesday at 5pm to see my Fragile X Syndrome Interview. Or check it out on the web by clicking here.
I hope it went well, I hope that I answered the right way to represent all of us FXS moms well. Let me know if you watch it and what you thought!!!
So now 3 can say with her four fingers held out to your face, "I 4!" very proudly! So make note of that for any of you who read this, my youngest is now 4 years old so now she is named 4 on this blog...
OK, so first before I post pictures I must explain that I have been making great effort to not overwhelm 4 as much as possible because this whole hyper-arousal thing seems to be a huge issue with her. So I just kept her birthday party on Sunday to a minimum with just having family (which is pretty big anyway). Well, things were going pretty well until she sat down in front of the cake while we sang Happy Birthday...
now usually, children love the attention they get at their birthday party, the presents, the gifts the fact that they are the center of attention. Well, with kids who suffer from hyper-arousal issues that is just a whole different story. We didn't even get half way through the traditional birthday song and she started to shake, scream and run away as fast as her bare feet would take her. It took us all by surprise but, was a good lesson on how real this hyper-arousal thing is. She was able to recover quickly with me hugging her and rubbing her back for some good strong sensory input and then she was ready for cake and ice cream. It is times like that that I am glad it is my family there and not others who may not understand what just happened and I have to go through the whole explanation.
Anyway, it was a lot of fun, and I am so glad my family came. We got some great pictures.
I hope it went well, I hope that I answered the right way to represent all of us FXS moms well. Let me know if you watch it and what you thought!!!
So now 3 can say with her four fingers held out to your face, "I 4!" very proudly! So make note of that for any of you who read this, my youngest is now 4 years old so now she is named 4 on this blog...
OK, so first before I post pictures I must explain that I have been making great effort to not overwhelm 4 as much as possible because this whole hyper-arousal thing seems to be a huge issue with her. So I just kept her birthday party on Sunday to a minimum with just having family (which is pretty big anyway). Well, things were going pretty well until she sat down in front of the cake while we sang Happy Birthday...
now usually, children love the attention they get at their birthday party, the presents, the gifts the fact that they are the center of attention. Well, with kids who suffer from hyper-arousal issues that is just a whole different story. We didn't even get half way through the traditional birthday song and she started to shake, scream and run away as fast as her bare feet would take her. It took us all by surprise but, was a good lesson on how real this hyper-arousal thing is. She was able to recover quickly with me hugging her and rubbing her back for some good strong sensory input and then she was ready for cake and ice cream. It is times like that that I am glad it is my family there and not others who may not understand what just happened and I have to go through the whole explanation.
Anyway, it was a lot of fun, and I am so glad my family came. We got some great pictures.
4 had Sprite, our goat, out on her leash so she could eat down some of the weeds in the flower bed. It was too cute!
Marc loves our goat...
Aunt Kirsten had a great time entertaining the kids!
And then on her actual birthday day, we made sugar cookies with cousins and had a great time making a yummy mess...
Then today we brave yet, another, two-dollar Tuesday at Thanksgiving Point for the beloved Dinosaur Museum... am I crazy??? Good grief, the things I do for my kids!
9 loves his cousin Jman! Can you tell?
This picture doesn't even begin to show you the crowd that was there!Oh, and on Saturday before 4's birthday party Marc and 13 went on a hike and had a great time, so here are some pics of that too.
4 remarks:
You did a great job on your interview. I thought you sounded so calm and put together. You should be very proud of yourself and all you accomplish. You amaze me Rach, keep up all your hard work and your up beat attitude because that is what makes you who you are- a wonderful mom and person! Love ya!
I'm so impressed with you and your kids, not just on that video but ALL the time! I hope you're feeling well and get some "ME" time :)
I loved your interview! your are a pro. 4 totally stole the camera did you noticed? darling!
wow what fun! the kids really enjoy there family you and Marc are doing such a great job. Keep it up
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