Friday, August 29, 2008

The X Factor and the Rainbow Connection

What kind of headline is that? Well, let me tell you my thought process...

I was checking out Ryan Shupe and the Rubber Band online because I really think it would be cool to have them do a Fundraiser Concert for Fragile X Syndrome Awareness. So, of course, being one of my favorite bands I listened to some of their songs on website and reminisced about some of my old favorites... have any of you heard them? If you have of course one of your favorites would be the "Corn Dog" song. But, one I thought of was the one they sing, "Rainbow Connection." You know, the one Kermit the Frog sings..."Why are there so many songs about rainbows and what's on the other side..."

Ya, well, I love that song, loved it since I first heard good ol' Kermy sing it.

Have you ever really listened to the lyrics? I will post them below so you can read my thoughts and then put them together.

I really want to get the word out there about Fragile X Syndrome. Why am I so passionate about it? Why don't I just take care of the tasks I have here at home and let someone else worry about FXS Awareness? I don't know really. It's just in me I guess. A desire to advocate and to educate for my children in a way that may bring everyone to the front line. I want people to understand my children. I want people who have children like mine to know there is someone else out there that is facing the same hardships and successes.

Some may say I am a dreamer and that in reality I can't expect to accomplish all this in short time. I am patient and I will keep working at it. I have to believe that someone out there will help me bring Awareness. I have to believe that God will give me strength to move forward, regardless of how many uneducated people treat my children as if they are dumb, awkward, or ill-parented.

I know that when my son was struggling all those years to speak, to walk, and to play with peers it was one of the hardest things I had to go through. Not knowing what exactly to do for him, not knowing how to cope with his late night wakings and scary tantrums, trouble with transitions, and inability to communicate his needs or wants was heart wrenching. I wanted to know what was causing these struggles for him. I want any parent out there who may have the same struggles I did, to be able to learn sooner, rather than later what they can do for their child.

I want to know that if I get to the other side of this barrier that there are people who want to help get the word out there. That many families who struggle as we did, may have peace and understanding in their home.

So I will keep believing that Heavenly Father will guide me and help me in trying to pave the way to awareness for Fragile X Syndrome--that I'll get to the other side of the Rainbow.

Kermit the Frog

Why are there so many
Songs about rainbows
And what's on the other side
Rainbows are visions
They're only illusions
And rainbows have nothing to hide
So we've been told and some chose to
Believe it
But I know they're wrong wait and see

Someday we'll find it
The Rainbow Connection
The lovers, the dreamers and me

Who said that every wish
Would be heard and answered
When wished on the morning star
Somebody thought of that
And someone believed it
And look what it's done so far
What's so amazing
That keeps us star gazing
What so we think we might see

Someday we'll find it
That Rainbow Connection
The lovers the dreamers and me

Have you been half asleep
And have you heard voices
I've heard them calling my name
Are these the sweet sounds that called
The young sailors
I think they're one and the same
I've heard it too many times to ignore it
There's something that I'm supposed to be

Someday we'll find it
The Rainbow Connection
The lovers, the dreamers and me

6 remarks:

Rochelle said...

Rachael - You have always been an amazing person. I believe in you, you are the kind of person who will accomplish anything you set out to do!!! I can't imagine how hard it is with you kids, but they are so cute and innocent, they are lucky to have you as their mom!!!

Anonymous said...

I like that song too...I've only heard kermit sing it though. I'll never think of it the same now, it does have meaning that I never paid attention to before!

Landon Andrew said...

Amen sister! That is where we are at now! Night wakings, not being able to communicate through words, etc. There will be someday though! Wished we lived closer.

brookiebaby said...

That is a sweet song. It's it interesting, how some songs can just put into words what we are feeling, when sometimes it's hard to communicate it to others. I think that you're doing a great job being an advocate and raising awareness on FXS. Heavenly Father had you in mind when he chose to send your two special spirits down to be in your home and in your care. And from my standpoint of being a sibling of someone with FXS, I think that he knew that our family needed to be taught certain lessons that we wouldn't have been able to learn otherwise! It's hard to keep that perspective, all of the time, though. Ask Nicole how I lost my temper with her because she wouldn't try to read the difference on the shampoo and conditioner bottles today! :) But, I can't imagine my life with out her sweet spirit, and appreciate the lessons I learn from her. And know they'll help me as I prepare to take on my own challenge of motherhood!
P.S. Thanks for stopping by the other day! So good to see you!

Suzy said...

Great thoughts! I love that song too.

Ethington Family said...

you made me cry with your sweetness. I think what you are doing is incredible! I have always know you would do great things Rach. You have too much passion, and talents not to. I love that about you. You are a wonderful mom, and I only hope I can be that kind of mom- person. i wish you happiness and success.