Sunday, August 31, 2008

Want to know more about me?

Mary tagged me so here it goes...

What is your full name- Rachael (I have no middle name and my last name I try to leave off my blog)
Nickname- Honey (I think only my husband has a nickname for me)
Coke or Pepsi? Pepsi
Song that resembles your life- Happy Ever After, by Carrie Underwood from "Enchanted"
Milk or dark chocolate- milk chocolate
Big mac Or whopper- I like the cheap 59¢ hamburger from Arctic Circle--it's the best
Beach or Mountains- Mountains
What kind of shoes are you wearing- Bare foot
TV or Book- BOOK!
Favorite store- Walmart
What was the last thing you ate? watermelon and pasta salad
Clean freak or total slob- in the middle
Do you wish on stars- yes
Ever been stung by a jelly fish- No
Best cartoon ever- Inspector Gadget
What scares you- the dark, scary movies, losing my family
Favorite doughnut? cream filled or apple fritter
Been to LA? No
Least favorite veggie- can't think of one at the moment
Dreamer or doer- both
One word that describes you- involved
Name of your first friend- Susan (that I remember)
Night light or completely dark- night light
Believe in love at first sight? yes
Best toppings for a pizza? pepperoni, sausage and olives
Ever owned a goldfish? no
potato chips or french fries? potato chips
Who should play you in a made for TV movie? Cameron Diaz--not that I look like her I just picked her I guess
Spender or Saver? saver
Butterflies or dragonflies- butterflies
Which ONE would you like to do the most- Skydiving Rappelling Scuba Diving: Rappelling
Fearful or fearless? both
Bully or bullied? bully earlier in life and now I would say I can be both
Glass 1/2 full or 1/2 empty? 1/2 full
Ever sent to the Principal's office? no
Social butterfly of wallflower? social butterfly
Secret keeper or blabber mouth? secret keeper
Shift or Automatic? Automatic
Worry wart or worry free? worry wart
African safari or bicycle through Europe? bicycle through Europe
Ice cubes or crushed? cubes
What do you like on your burgers? Beef, american cheese, tomatoes, lettuce, pickles, avacado, ketchup and mayo.
Bikini or board shorts- board shorts
Favorite kinda cookie- snicker doodles and sugar cookies
Best Commercial- the Mountain Dew one that Wayne showed me --here, check it out
Word or phrase you say a lot? "You've got to be kidding me..." and "Bless her/his heart." or "Sakes a livin'"--got that one from my grandma
Favorite flower- lilacs and tulips

Friday, August 29, 2008

The X Factor and the Rainbow Connection

What kind of headline is that? Well, let me tell you my thought process...

I was checking out Ryan Shupe and the Rubber Band online because I really think it would be cool to have them do a Fundraiser Concert for Fragile X Syndrome Awareness. So, of course, being one of my favorite bands I listened to some of their songs on website and reminisced about some of my old favorites... have any of you heard them? If you have of course one of your favorites would be the "Corn Dog" song. But, one I thought of was the one they sing, "Rainbow Connection." You know, the one Kermit the Frog sings..."Why are there so many songs about rainbows and what's on the other side..."

Ya, well, I love that song, loved it since I first heard good ol' Kermy sing it.


Have you ever really listened to the lyrics? I will post them below so you can read my thoughts and then put them together.

I really want to get the word out there about Fragile X Syndrome. Why am I so passionate about it? Why don't I just take care of the tasks I have here at home and let someone else worry about FXS Awareness? I don't know really. It's just in me I guess. A desire to advocate and to educate for my children in a way that may bring everyone to the front line. I want people to understand my children. I want people who have children like mine to know there is someone else out there that is facing the same hardships and successes.

Some may say I am a dreamer and that in reality I can't expect to accomplish all this in short time. I am patient and I will keep working at it. I have to believe that someone out there will help me bring Awareness. I have to believe that God will give me strength to move forward, regardless of how many uneducated people treat my children as if they are dumb, awkward, or ill-parented.

I know that when my son was struggling all those years to speak, to walk, and to play with peers it was one of the hardest things I had to go through. Not knowing what exactly to do for him, not knowing how to cope with his late night wakings and scary tantrums, trouble with transitions, and inability to communicate his needs or wants was heart wrenching. I wanted to know what was causing these struggles for him. I want any parent out there who may have the same struggles I did, to be able to learn sooner, rather than later what they can do for their child.

I want to know that if I get to the other side of this barrier that there are people who want to help get the word out there. That many families who struggle as we did, may have peace and understanding in their home.

So I will keep believing that Heavenly Father will guide me and help me in trying to pave the way to awareness for Fragile X Syndrome--that I'll get to the other side of the Rainbow.


RAINBOW CONNECTION
Kermit the Frog

Why are there so many
Songs about rainbows
And what's on the other side
Rainbows are visions
They're only illusions
And rainbows have nothing to hide
So we've been told and some chose to
Believe it
But I know they're wrong wait and see

Someday we'll find it
The Rainbow Connection
The lovers, the dreamers and me

Who said that every wish
Would be heard and answered
When wished on the morning star
Somebody thought of that
And someone believed it
And look what it's done so far
What's so amazing
That keeps us star gazing
What so we think we might see

Someday we'll find it
That Rainbow Connection
The lovers the dreamers and me

Have you been half asleep
And have you heard voices
I've heard them calling my name
Are these the sweet sounds that called
The young sailors
I think they're one and the same
I've heard it too many times to ignore it
There's something that I'm supposed to be

Someday we'll find it
The Rainbow Connection
The lovers, the dreamers and me

Saturday, August 23, 2008

Old pics

I downloaded some pics from my father-in-law and wanted to post them--they are cute.

12 on grandma and grandpa's water slide/skim board

12, 8 and their CA cousins at the local pool



Marc and 3 on grandpa's new riding lawn mower.

Kids Who Count

Well, now that 2 is 3 she has to move on from Kids Who Count to the District Preschool. I am very excited for her but, it is hard to see her have to leave all her little friends and her teacher. Here is a little bit from her last day. And thanks, to all the parents who said it was OK to put these pics on my blog. They are all so cute. Just leave a message if you want copies of the pics you see, I will bring them into work.

More Family in Town

Marc's cousin, aunt and uncle came to visit for a while. Here are some pics of a little BBQ.

8 and "grandma" Florence (she is Marc's aunt)


Marc and his cousin Cathy




Jumping Hoops? No, barrels.

Talent caught on video