A Cowgirl 2

Isn't she cute in her pink cowgirl hat!!!

Fragile X Conference

Well, it is official. I will be flying out to Missouri for the 11th International Fragile X Conference. I have never flown before! I am scared. Can I say that more bluntly?

I am going not only for my own kids but for the benefit of getting information out there for everyone else. If you have not yet clicked on the Fragile X link to find out what Fragile X Syndrome is I encourage you to check out www.fragilex.org -- there is a video that is 7 1/2 minutes long that really gives you a good idea of what kids with Fragile X Syndrome are like--if you haven't already gotten a good idea from reading my blog.

I was very, very blessed to be able to go to a class 3 weeks ago for children with autism. Every time autism is discussed thoroughly, Fragile X Syndrome is usually mentioned. Often kids with Fragile X Syndrome can also have autism. So I went to the class to learn more about how to help children with autism relate to the world around them. It is quite an intense learning experience and I am very grateful for it. But, at the same time I am learning how many people truly do not understand Fragile X, nor do most people want to. Why? Because it is a genetic disorder and it is scary to have to look at it as affecting other family members.

Anyway, I just want to learn all that I can--so, I am going to the conference. I am going with another mother of Fragile X Syndrome who is involved in the Utah Association. I am excited to come back and talk to people about what I have learned. I have already been asked by the school district to teach a class on Fragile X Syndrome for all the preschool teachers. I have flyers around our area at doctor's offices and schools.

Just doing what I can to educate so that more people know how to help my children and anyone else who has Fragile X Syndrome.

Bike Buddies

Here are 12 and 8 riding their bikes. They really are good buddies. Cute! Brotherhood--one of the best relationships there are.

Engagement

Aaron and Chelsea gave me the priviledge of taking the pictures for their invitations I am going to be designing. I wanted to post a couple. We had a lot of fun. Chelsea is such a good sport!

Twist and Shout!!!

Here are the long awaited pictures I promised of our performance. 8 did everything so well and was a hit. 16 was the star of the show. 12 was scared out of his mind and couldn't quite get past the fear until the "basketball song" and then he relaxed a bit. Oh, could I be any prouder of my kids!?? Oh, ya, and I didn't forget my words like I thought I would.

8 is the only boy in the group for "Annie" so you can't miss him in the white shirt.

Me and 16 she is in the red with black polka dots and I am in the black. (Hairspray, New Girl in Town)

The pictures of "High School Musical": 16 is in the silver pants, 12 is in the red shirt with black sleeves.

A bird in the hand?

2 was trying to catch the little baby bird that had fallen out of the nest that is above the light on the front of our house. I wouldn't let her touch it because it looked a little on the injured side. But, I got some cute pictures.

Also here are some fun pics of her and out horses and my nephew stopped by for a haircut.

8's Great!

8 had his little school program today. They sang some songs and we watched a video and had rootbeer floats after. The pics on here are from the slide show they showed and I was at an angle but, I think you will get the idea.

I am so proud of 8 and all he has accomplished. He really has leaped forward and doesn't let Fragile X stand in his way--it certainly tries sometimes but overall 8 triumphs. He is a true example to us all.

Way to go 8!!!